Queen Letizia of Spain has once again left her indelible mark in the fight for awareness and support for people with rare diseases.
During an event held on Tuesday, March 5 in Seville, the monarch captivated attendees with a passionate and masterful speech, demonstrating her deep knowledge of the subject and exceptional communication skills.
Without resorting to written notes, the Queen managed to convey a powerful and moving message that has resonated throughout the country.
Queen Letizia’s speech in Sevilla
In an atmosphere charged with emotion and expectation, Queen Letizia took the stage and, with an imposing presence and a clear and firm voice, began her speech with precision.
From the very first moment, her words captivated the audience, making evident her unwavering commitment to the cause of rare diseases.
“Good morning, how are you. President of the Junta, Minister of Health, Government Delegate, Mayor of Seville, Thank you for welcoming us to your city. I also greet the other authorities who are with us and all the people who are part of FEDER,” the Spanish consort began her speech.
As her speech progressed, the Queen demonstrated an exceptional mastery of the subject, offering relevant data.
“In this day that ends today, I am the last one, and in which we have known what are the requirements of social entities around low prevalent pathologies. We have also attended with interest this very didactic approach of Lis, on the mutations that cause these diseases. Hence the importance of genomics research to determine their molecular basis,” continued the queen.
One of the highlights of her speech was the fluidity and naturalness with which she expressed herself.
“It has become clear to us that recognizing the specialty in clinical genetics is medullar to promote precision medicine and personal, personalized medicine and it has also become clear to us that prevention goes far beyond primary. It also has to do with prevention linked to research, early diagnosis and equal access to pharmacological treatments and other different therapies, because only if we can identify the causes of the disease can we prevent it,” said Letizia.
Without the need to resort to written notes, Queen Letizia managed to spin her ideas in a coherent and convincing manner, demonstrating her vast knowledge and passion for the cause.
“Also because preventing means slowing down, it means mitigating the consequences of suffering from a rare disease. An example of these tools is what you have referred to, not only Lis, but also Juan, the president of FEDER, about neonatal care because FEDER has been trying for a long time to expand those pathologies that are in the neonatal nursery and to be homogeneous in the 17 autonomous communities of Spain,” he said.
In addition to her verbal eloquence, the Queen also captivated the audience with her body language and innate charisma.
“Another year, another world day in which you continue to put words to what it means to live with a chronic, disabling disease, which almost never has treatment and affects all aspects of life. Another year more looking for all of us to get involved and that the administrations continue with their commitment to the historical, legitimate demands of your group,” he said.
Her gestures, her gaze and her stage presence reinforced the impact of her message, creating a genuine connection with everyone present.
“25 years of tireless work of FEDER and also of all the associations that are part of this federation. Rowing all in the same direction to get the maximum possible support in all areas, medical, scientific, economic, social and I know that you are all aware of what you have advanced, what you have already achieved.” remarked Queen Letizia.
But beyond her communication skills, what really stood out was her unwavering commitment to the cause of rare diseases.
“We are here to recognize all the people who suffer from a rare disease and the families who accompany you on this journey for your strength, your generosity, your patience and your intelligence. And also to recognize the capacity you show every day to continue caring for your sons, daughters, father, mother, brothers, sisters, to continue caring, to continue claiming your rights and also to remind us that we have the path I was talking about, we must all do it together,” she said.
Queen Letizia not only spoke from the perspective of a concerned monarch, but also from that of a person deeply involved in the daily struggle of those who face these rare diseases.
“Thank you very much and in 25 years Luis, when we celebrate the 50th anniversary of FEDER I will be 76, I hope, hopefully, that you also count on me, thank you,” with these words she ended her speech.
His speech was a call to action, a reminder of the importance of providing support, resources and understanding to people with rare diseases and their families.
Queen Letizia’s ability to connect with the audience was remarkable, establishing an emotional bond.